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You are here: Home / Guides / Huntington’s
Huntington's Ribbon

Huntington’s

01/05/2023

Huntington’s disease is a neurological condition. It is an inherited disease that can have a significant impact on a person’s physical and mental health.  In this guide, we will provide an overview of Huntington’s disease, its causes, symptoms, and treatment options, as well as some tips for managing the condition in your everyday life. 

What is Huntington’s Disease? 

Huntington’s disease is a genetic condition that affects the nerve cells in the brain.  It causes a breakdown of the nerve cells, which leads to a decline in mental and physical abilities over time.  Huntington’s disease is caused by a mutation in the huntingtin gene, which is inherited from a person’s parents. 

Symptoms of Huntington’s Disease 

The symptoms of Huntington’s disease can vary from person to person, but they generally include a combination of physical, cognitive, and psychiatric symptoms. Some common symptoms include: 

  • Involuntary movements, such as jerking or twitching 
  • Difficulty with coordination and balance 
  • Difficulty with speech and swallowing 
  • Changes in mood, including depression and anxiety 
  • Cognitive decline, including difficulty with memory and decision-making 
  • Behavioral changes, including aggression and irritability 

Treatment Options for Huntington’s Disease 

There is currently no cure for Huntington’s disease, but there are several treatment options available that can help manage the symptoms and improve quality of life. These may include: 

Medications: There are several medications available that can help manage the movement and psychiatric symptoms of Huntington’s disease. 

Therapy: Physical and occupational therapy can help maintain mobility and independence, while speech therapy can help improve communication and swallowing abilities. 

Supportive care: People with Huntington’s disease may require supportive care, such as nutrition support or palliative care, to manage symptoms and improve quality of life. 

Managing Huntington’s Disease in Your Everyday Life 

Living with Huntington’s disease can be challenging, but there are several things you can do to manage the condition and improve your quality of life.  Here are some tips: 

Plan ahead: As Huntington’s disease progresses, it can become more difficult to manage daily activities.  It is important to plan ahead and make arrangements for support and care as needed. 

Stay active: Regular physical activity, such as walking or swimming, can help maintain mobility and improve overall health.  Mobility aids such as reachers and drinking aids may be useful. 

Connect with others: Huntington’s disease can be isolating, so it’s important to connect with others who understand what you’re going through.  Support groups and online communities can be a great source of comfort and information. 

Take care of yourself: Caring for a loved one with Huntington’s disease can be physically and emotionally exhausting.  It’s important to take care of yourself and seek support when needed. 

More Information

Huntington’s Disease Association 

New Zealand Neurological Foundation  

Huntington’s Disease Youth Orgnisation 

Guides | Mobility Centre

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