Motor Neurone Disease (MND) is a progressive and debilitating condition that affects an estimated 300 New Zealanders at any given time. Also known as Amyotrophic Lateral Sclerosis (ALS), this condition affects the neurons that control voluntary muscles, resulting in muscle weakness, spasticity, and difficulty with speech, breathing, and swallowing. While there is currently no cure for MND, there are several treatments and mobility aids that can help people with this condition manage their symptoms and maintain their independence.
Symptoms of Motor Neurone Disease
The symptoms of MND vary from person to person and can be difficult to diagnose in the early stages. Some of the most common symptoms include:
- Muscle weakness and stiffness
- Spasticity
- Muscle wasting
- Difficulty with speech and swallowing
- Difficulty breathing
- Fatigue
- Cramps and twitching
- Unintentional weight loss
As the disease progresses, the symptoms become more severe and may lead to complete paralysis.
Living with Motor Neurone Disease
Living with MND can be challenging, both physically and emotionally. However, with the right support and care, people with MND can continue to live full and meaningful lives. It is important for people with MND to work closely with their healthcare providers to manage symptoms, maintain independence, and access appropriate support services.
Treatment for Motor Neurone Disease
While there is currently no cure for MND, there are several treatments and therapies that can help manage symptoms and improve quality of life. Some of the most common treatments for MND include:
- Medications to manage symptoms such as muscle cramps and spasticity
- Physiotherapy and occupational therapy to maintain mobility and independence
- Speech and language therapy to maintain communication and swallowing function
- Nutritional support to prevent weight loss and maintain muscle mass
- Respiratory support to manage breathing difficulties.
Mobility Aids for Motor Neurone Disease
Mobility aids can help people with MND manage their symptoms and maintain their independence. Here are some of the mobility aids that can be helpful for people with MND:
Walking aids: Walking aids such as canes, crutches, and walkers can help people with MND maintain their balance and reduce the risk of falls. These aids can also help people conserve their energy and reduce muscle strain.
Wheelchairs: Wheelchairs can be helpful for people with MND who experience severe muscle weakness or mobility limitations. Wheelchairs can also help people with MND conserve their energy and participate in activities that they may not be able to do without a wheelchair.
Communication devices: Communication devices such as speech-generating devices, eye-tracking systems, and head-pointing devices can help people with MND communicate with others when speech is difficult or impossible.
Feeding aids: Feeding aids such as special utensils, cups, and plates can help people with MND maintain their independence when eating and drinking. These aids can be designed to accommodate various degrees of hand and arm weakness.
Breathing aids: Breathing aids such as ventilators, cough-assist machines, and nebulisers can help people with MND manage respiratory symptoms and maintain lung function.
Motor Neurone Disease is a progressive and debilitating condition that can have a significant impact on an individual’s quality of life. While there is currently no cure for MND, there are several treatments and mobility aids available to manage symptoms and maintain independence. By working with a healthcare provider and exploring different mobility aids, people with MND can manage their symptoms and continue to participate in activities that are important to them. With the right support, people with MND can live full and meaningful lives.
More Information
MND NZ – Motor Neurone Disease – Walk 2 D’Feet
Motor neurone disease (hemonga iaia) | Health Navigator NZ
